Wednesday, December 22, 2010

December 22, 2010

Merry Christmas! Our holiday vacation had a rough start, but things are already looking up.

Charlotte went home sick from daycare last Friday after she threw up, and she then developed a fever and bad cough over the weekend. On Monday Charlotte's pediatrician prescribed nebulizer treatments twice daily for 2-3 months. At first Charlotte was very resistant to the nebulizer (screaming, pushing), but she's pretty ok with it now. We've noticed that she falls asleep much more easily, so it's definitely helping her breathe more easily.

Last winter Charlotte received Synagis shots to prevent RSV. This winter we weren't able to get them for her because our insurance would only cover them if she was being treated for her Chronic Lung Disease. Well, the nebulizer counts as treatment, so Charlotte will once again be protected from RSV.

Then, we made what we hope is our final trip to Children's Hospital of Wisconsin in Milwaukee on Tuesday! Let's back up a bit...In late November we decided to remove Charlotte's GJ Tube (because she'd stopped throwing up - yay!), and put in the Mic-Key Button G-Tube again. We were able to do this ourselves at home, but we've been concerned because the tube itself (the hardware) has been leaking. We tried putting in our spare Mic-Key button, but it also leaked. We finally called CHW on Monday and Charlotte's nurse wanted to see her right away, so we drove down first thing Tuesday morning. Here's a picture of Charlotte barricaded on our bed while we finished getting ready to go:

Nurse Amanda had never seen a G-Tube leak like this before, so she deduced we must have received a faulty batch of Mic-Key buttons. She ordered up a new button and we haven't had any problems since. After leaving CHW we did a little shopping at the mall and as we left the mall we decided to drive to Eau Claire Tuesday night instead of waiting until Wednesday morning. The trip went smoothly except for a stretch of icy roads from Wisconsin Dells to Mauston, WI along which we saw 20+ cars and 3 semis in the ditch. It was all worth it though to wake up and not have to drive this morning!

Let the holiday celebrations begin! Tonight Grandpa and Grandma Russell took us to have dinner with Santa at Fanny Hill. Patrick went to this when he was a kid, so it was extra special to bring Charlotte. Here are a few photos from the evening:

Let's Eat! Wait, why is my shoe on the table?

Santa was a bit scary,

but better at a distance.

She loved it! She met Frosty and Rudolph!

Have a very Merry Christmas!

1 comments on "December 22, 2010"

Andi on December 23, 2010 at 7:21 AM said...

That picture with Santa is absolutely priceless!



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