Friday, January 29, 2010

January 29, 2010

We're settling in for winter around here. Charlotte doesn't have any appointments in Milwaukee until March so we're enjoying the travel-free period.

She is weighing in at 11lbs 6oz currently, despite the fact at times she is throwing up what seems like whole feeds. We're flying through burp rags around here. Outfits too.

The Monday after we got back from Milwaukee, the medical supply store delivered her feed pump. It has certainly made life easier. Now we're living life Showtime Rotisserie style: Set it and forget it.

Unfortunately, Charlotte has decided for the time being she is not longer interested in eating. Starting late last week she has gone from an average 0f 25% bottle feeds to less than 10% and it usually consists of 4-5 "zeros" and 1 or 2 substantial feeds of 20-30mls. We don't know what is up, but we hope it turns around soon. But we also know that this (tube feeding) is probably going to go on for quite a long time so we try to remain patient. At times we fall a little short.

She is sleeping well however. Taking out one of the overnight feeds has certainly made life easier. Katie feeds her from 11:00-12:30. I wake her up at 4:30 to eat again before I go run and then she sleeps pretty well again until her next feed at 8:00. I've even been able to get off the caffeine drip I was on and cut back to a cup of coffee in the morning.

During the day Charlotte is very alert and is starting to play a little bit. She coos some and has a couple favorite toys that always make her smile. We're looking forward to more changes in the coming weeks and months (hopefully involving less vomit).

1 comments on "January 29, 2010"

Paul on February 4, 2010 at 4:03 PM said...


She looks fantastic. I hope you are all keeping warm! Have you guys talked to the school district for any early childhood services like PT/OT for Charlotte? Just a thought :).

Paul, Kelly and the pups (woof)



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